PCOS - How I Got My Diagnosis, And What's Next

I've struggled with my weight and health since my first period at 12 years old. This journey began with the onset of puberty, a time when many young girls experience significant changes in their bodies and emotions. For me, however, it marked the beginning of a long and challenging battle with my weight that would impact nearly every aspect of my life. Regardless of the reasons for my visits to the doctor whether it was for routine check-ups, concerns about my health, or other unrelated issues I was always met with the same response: my weight was the primary concern. This singular focus on my weight felt incredibly disheartening, especially as I made various attempts to lose weight, eat less, or exercise more vigorously. Yet, despite my sincere efforts, I found it nearly impossible to maintain any weight loss over time. By the time I turned 18, I weighed an alarming 19 stone, and my menstrual cycles had become consistently irregular, adding to my distress and confusion. My GP, in an effort to address my hormonal issues, prescribed the depo injection, which not only prevented further weight gain but also stopped my periods altogether. This seemed like a temporary solution to my problems, but as the years went by, I tried various medications in hopes of managing my weight and my irregular periods. Eventually, I discovered a treatment that not only alleviated my constant pain but also saved me a significant amount of money on sanitary products, which had become an ongoing financial burden.

At 28, as I reflected on my life, I felt a strong desire to settle down, find a lifelong partner, and embark on the journey of starting the family I had always dreamed of.

After meeting the love of my life, I began to understand the implications of the depo injection and how long its effects would last within my body. My partner and I had many discussions about our future together, and it became clear that in order to move forward with our plans, I needed to stop the injection. By this point, I hadn't experienced a period since I was 18 years old, and I had completely forgotten the realities of menstruation—the painful cramps, the heavy flow, and the irregular cycles that had once plagued me.

Three months after discontinuing the injection, my periods returned with a vengeance, much to my surprise and dismay. I was unprepared for the intensity and discomfort that accompanied their return. During this tumultuous time, I also noticed that I had gained an additional 2 stone, despite maintaining the same diet and exercise routine that had previously worked for me. This sudden weight gain was not only frustrating but also concerning, as I felt that my body was betraying me in ways I couldn't understand.

Feeling desperate for answers, I finally returned to my doctor, pleading for help and expressing my concerns about my periods and the fact that my condition seemed to worsen with each pound I gained. It was clear to me that something was fundamentally wrong, and I was determined to find a solution. After months of seeking assistance and advocating for my health, my GP referred me to the hospital for further evaluation. This referral opened the door to a series of appointments, during which I was subjected to numerous questions, scans, and countless blood tests. The process was exhaustive and at times overwhelming, but I remained hopeful that I would finally receive the answers I so desperately sought. Ultimately, after all the testing, I was diagnosed with polycystic ovary syndrome, or PCOS, a condition I had never even heard of before.

The advantage of the NHS in the UK is that it is free, allowing individuals like myself to access medical assistance without the burden of financial strain. However, the downside to this system is that, while doctors may provide initial diagnoses, they often do not offer long-term assistance or follow-up care. Before receiving my diagnosis, I had no idea what PCOS entailed or how it would affect my life moving forward. As I left the hospital, I felt a mix of emotions—confusion, relief, and uncertainty about my next steps. The diagnosis was a turning point, but it also left me with many unanswered questions about managing my condition and how it would impact my future health and family planning.

After months of research and taking metformin, which was supposed to help regulate my cycle but didn't, I finally concluded that if the doctors won't help me, I need to help myself.

I began by researching the best and worst foods for PCOS, examining which supplements to take, and determining how much exercise I needed to do to lose weight and regulate my periods, so that someday soon my partner and I could start our family.

So here's what I've learned while doing my research: Firstly, it is essential to recognize that every woman is unique, with distinct preferences, body types, and metabolic rates. What may work effectively for me in terms of diet and exercise routines may not necessarily yield the same results for you. Each individual's journey towards health and fitness is personal and should be tailored to fit their specific needs and circumstances. However, through my exploration, I have discovered some fundamental principles that tend to resonate universally and can benefit a wide range of individuals.

One of the most crucial aspects of maintaining a healthy lifestyle is regular exercise. This doesn’t imply that you need to invest a fortune in hiring a personal trainer or committing to an expensive gym membership. Instead, there are numerous alternative ways to incorporate physical activity into your daily routine without breaking the bank. For instance, you can dedicate just an extra 20 minutes a day to engage in household chores or activities that often get postponed. Simple tasks like vacuuming, gardening, or even organizing your living space can serve as effective forms of exercise while also contributing to a cleaner and more organized home environment.

Moreover, consider the benefits of walking as a form of exercise. Going for a walk twice a day, even if it’s just for 15 to 30 minutes, can significantly increase your daily step count and improve your overall cardiovascular health. This small commitment to physical activity can be easily integrated into your routine. For example, you might choose to take a brisk walk during your lunch break or opt for a leisurely stroll in the evening to unwind after a long day. Additionally, making conscious decisions to incorporate more movement into your day-to-day life, such as taking the stairs instead of the elevator or walking to the shop instead of driving, not only helps in burning calories but also fosters a more active lifestyle.

These seemingly minor adjustments can accumulate over time, leading to significant benefits in weight management, whether your aim is to lose weight or simply maintain a healthy weight. Consistency is crucial. By incorporating these habits and making healthier choices part of your daily routine, you are more likely to notice positive changes in your body and overall well-being. Ultimately, the path to health isn't solely about drastic changes; often, it is the small, sustainable actions that yield lasting results. The results from losing weight and getting regular exercise will also help you see a difference in your PCOS.

As I mentioned previously, metformin did not provide me with the relief I had hoped for, and instead, it seemed to consistently cause me an upset stomach, which was quite uncomfortable and frustrating. However, it is important to note that my experience is not universal; metformin has been shown to be effective for many other women dealing with polycystic ovary syndrome (PCOS). In fact, it is estimated that between 1 in 5 to 1 in 8 women in the UK are affected by PCOS, a condition that can have a wide variety of symptoms and implications for health. Alarmingly, research indicates that approximately 80% of women with PCOS remain undiagnosed, highlighting a significant gap in awareness and diagnosis. Furthermore, many women with PCOS may not exhibit any noticeable symptoms, which can lead to a lack of understanding about their condition and its potential health ramifications.

Through extensive research on PCOS, I discovered that a considerable number of women suffering from this condition are likely to experience some form of vitamin or mineral deficiency. Common deficiencies include essential vitamins such as B12 and B9 (folate), as well as vitamin D. Additionally, important minerals like potassium, zinc, and magnesium are often found to be lacking in the diets of those with PCOS. These deficiencies can exacerbate symptoms and contribute to the overall challenges of managing the condition. However, it is crucial to approach supplementation with caution. I do not recommend simply taking these supplements without proper guidance; instead, it is advisable to consult with your general practitioner (GP). A healthcare professional can conduct the necessary tests to determine your specific deficiencies and recommend a tailored approach to supplementation that meets your individual health needs.

Now before we delve into food and nutrition, I feel it is essential to clarify that I am not a healthcare professional, nor am I a certified dietitian. My insights and recommendations stem from extensive personal research, as well as my own experiences and observations regarding what has been effective for me in my journey toward better health.

When it comes to understanding the dietary needs of women with Polycystic Ovary Syndrome (PCOS), I have reached the conclusion that the dietary principles align closely with those recommended for individuals aiming to lose weight or adopt a healthier lifestyle. Specifically, a key strategy involves reducing carbohydrate intake, which can help manage insulin levels and alleviate some of the symptoms associated with PCOS. In addition, incorporating a variety of leafy dark green vegetables into your meals is crucial. These vegetables are not only low in calories but are also packed with essential vitamins, minerals, and antioxidants that support overall health. Furthermore, it is important to include healthy fats in one's diet, such as avocados, nuts, seeds, and olive oil. These fats can help keep you satiated and are beneficial for hormonal balance. Additionally, ensuring an adequate intake of protein is vital, as it helps to maintain muscle mass and keeps you feeling full for longer periods.

After dedicating considerable time to researching and experimenting with various dietary approaches, I find myself several years into my personal health journey. It is only recently that I have begun to consistently implement these dietary changes into my daily routine.

I have observed positive outcomes, particularly as I have embraced the aforementioned strategies, alongside the practice of intermittent fasting. This method has allowed me to structure my eating patterns in a way that supports my energy levels while also promoting better metabolic health.Intermittent fasting is beneficial for PCOS as it prevents constant spikes in insulin levels.

In my opinion, if you find yourself in a similar situation to mine, it is beneficial to engage in open discussions with your General Practitioner (GP) about your health concerns. Additionally, exploring different sustainable diets and being open to trying various approaches can help you identify what works best for your individual needs. It is also crucial to incorporate physical activity into your daily routine, aiming to increase your step count as much as possible. Regular movement not only enhances physical health but also contributes to improved mood and overall well-being. Remember, each person's journey is unique, and finding the right balance that suits your lifestyle and health goals is key.

In conclusion, it is essential to take the time to conduct thorough research tailored to your unique circumstances and lifestyle choices. This involves exploring various dietary options and lifestyle modifications that can significantly impact your health and well-being. Engaging in conversations with your general practitioner (GP) is a crucial step in this journey, as they can provide personalized advice and support based on your specific health needs. Additionally, it is important to experiment with different diet and lifestyle techniques that are sustainable for you, ensuring that they align with your personal preferences and daily routine.

I understand from my own experience that the thought of dedicating an entire year to trying out various diets and exercise plans, alongside regular visits to your GP, can feel overwhelming. The desire to find a quick fix for conditions like polycystic ovary syndrome (PCOS) is something many of us share, and the idea of resolving such a complex issue within a month is undeniably appealing. However, it is crucial to recognize that investing a year or even two in nurturing and caring for your body—the only one you will ever have—is a worthwhile endeavor.

This commitment to your health can lead to a multitude of benefits, such as the possibility of starting the family you may desire, restoring regular menstrual cycles, or achieving your weight maintenance or weight loss goals. It is important to approach this journey with patience and perseverance, as meaningful and lasting changes often require time and dedication. By prioritizing your health and making informed choices, you set the foundation for a better quality of life and ultimately pave the way for a future that aligns with your aspirations. Embrace this journey as an opportunity for growth and self-discovery, and remember that every small step you take contributes to your overall well-being.

As I have only just begun implementing these changes in my own life, I unfortunately do not have tangible results that I can present to you at this moment. However, I want to emphasize that my journey officially starts today, and I am committed to documenting my experiences through a series of posts that will detail my updates and progress along the way. This is not just a personal endeavor; it is a shared journey that I hope many of you will consider joining me on. For those of you who may also be navigating the challenges of Polycystic Ovary Syndrome (PCOS) like I am, or for anyone who is simply seeking to lead a healthier lifestyle, I believe that together we can create a supportive community. By sharing our experiences, tips, and encouragement, we can motivate each other to stay on track and remain focused on our goals.

I plan to explore various aspects of wellness, including nutrition, exercise routines, mental health strategies, and lifestyle adjustments that can positively impact our overall well-being. Each post will reflect my ongoing journey, capturing both the successes and the hurdles I encounter. I am eager to share insights, challenges, and the small victories that come with making significant lifestyle changes.

As we embark on this path together, I invite you to reflect on your own goals and aspirations. Whether you are aiming to manage symptoms of PCOS, improve your physical health, or simply cultivate a more balanced life, I hope that we can inspire one another. Let’s keep each other accountable as we move forward, and in a year's time, I look forward to seeing how far we have all come. Together, we can strive to be in a place where we feel empowered, healthy, and aligned with our personal aspirations.